Cuidadores(as) espirituais nos cuidados paliativos: revisão integrativa de literatura empírica

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Published: Dec 31, 2021
DOI: https://doi.org/10.5752/P.2175-5841.2021v19n60p978
Keywords:
Cuidado Espiritual, Cuidadores(as) Espirituais, Capelania, Cuidados Paliativos, Bioética

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Hartmut
Faculdade Fidelis
https://orcid.org/0000-0003-3918-7143
Mary Rute Gomes Esperandio
Pont´ifícia Universidade Católica do Paraná
https://orcid.org/0000-0001-8521-8794

Abstract

Spiritual care is essential for the quality of services in palliative care (PC). This article presents a review of the empirical literature about spiritual caregivers working in palliative care. The method used was the integrative review, with a survey at CAPES Portal of Periodicals, PsycARTICLES and PubMed. After examining the 643 found publications, 54 studies were selected for analysis, and categorized into four major themes: “identity of spiritual caregivers”, “training of spiritual caregivers”, “practice of spiritual caregivers” and “practice impacts of spiritual caregivers”. Spiritual care is crucial for the well-being and end-of-life quality, and transdisciplinary palliative care is fundamental in order to meet spiritual and psychosocial needs, which will be facilitated by the adoption of standardized methods. Training curricula and assessment tools allow a systematic assessment of the impact of education on patient, family and clinical staff. Considering the importance of religiosity in the Brazilian cultural context, the deepening of the spiritual care theme is of great relevance for professionals that work in palliative care. Bioethics and Theology are called upon to contribute with studies in this area so that spiritual care can be effectively integrated into PC teams.

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How to Cite
HARTMUT; ESPERANDIO, Mary Rute Gomes. Cuidadores(as) espirituais nos cuidados paliativos: revisão integrativa de literatura empírica. HORIZONTE - Journal of Studies in Theology and Religious Sciences, Belo Horizonte, v. 19, n. 60, p. 978, 2021. DOI: 10.5752/P.2175-5841.2021v19n60p978. Disponível em: https://periodicos.pucminas.br/horizonte/article/view/0000-0003-3918-7143. Acesso em: 27 aug. 2025.
Issue
v. 19, n. 60, set./dez. 2021 - Dossiê - Espiritualidade e saúde
Section
Artigos/Articles: Dossiê/Dossier

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Author Biographies

Hartmut, Faculdade Fidelis

Doutor em Teologia pela PUCPR (2017). Mestre em Teologia pela PUCPR (2012). Pós-Graduado em Ministério Pastoral (Teologia) pela Faculdade Fidelis (2009). Pós-Graduado em Marketing pela ESPM (1997). Graduado como Bacharel em Teologia pela Faculdade Fidelis (2016). Graduado em Ciências Econômicas pelo Centro Universitário Campos de Andrade (1985). Professor na Faculdade Fidelis (desde 2013).

Mary Rute Gomes Esperandio, Pont´ifícia Universidade Católica do Paraná

Pesquisadora na temática da Espiritualidade e Saude desde 2009. Professora adjunta no Programa de Pós-Graduação em Teologia e no Programa de Pós-Graduação em Bioética da Pontifícia Universidade Católica do Paraná - PUCPR. Realizou pós-doutorado (2013) em Psicologia da Religião pela Indiana University South Bend, em South Bend - USA e em Cuidados Paliativos (2018-2019) na University of Humanistic Studies - UHS, in Utrecht, Holanda. Possui graduação em Psicologia pela Universidade do Vale do Rio dos Sinos (2003) e também em Pedagogia, pela Universidade Regional do Noroeste do Estado do Rio Grande do Sul (1992). Tem Mestrado (2001) e Doutorado (2006) em Teologia, pela Escola Superior de Teologia. Tem experiência na docência teológica e em bioética, com ênfase na interface Psicologia, Bioética e Teologia, atuando principalmente nos seguintes temas: Espiritualidade e Saúde, Subjetividade contemporânea, Processos de subjetivação, Psicologia da Religião, Coping Religioso Espiritual. Desenvolve pesquisas em torno dos seguintes temas: Espiritualidade e Saúde, Subjetividade Contemporânea e Religiosidade, Coping Religioso/Espiritual. É membro da Sociedade Brasileira de Bioética; membro do Comitê Executivo da Society for Intercultural Pastoral Care and Counseling - SIPCC (2007) e da IAPR - International Association for the Psychology of Religion (2011). Membro do Grupo de Trabalho Psicologia e Religião da ANPEPP (Associação Nacional de Pesquisa e Pós-Graduação em Psicologia. Foi Coordenadora pro-tempore dos Programas Acadêmicos de Pós-Graduação na área de Ciências da Religião e Teologia (2016-2018).

References

ANDERSON, W. G. et al. A multicenter study of key stakeholders’ perspectives on communicating with surrogates about prognosis in intensive care units. Annals of the American Thoracic Society, v. 12, n. 2, p. 142–152, fev. 2015. Disponível em: <. Acesso em 09 mai. 2021.
BEN-ARYE, E. et al. Crossing the death threshold: experiencing multi-disciplinary end-of-life integrative oncology training. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, v. 26, n. 7, p. 2251–2257, jul. 2018. Disponível em: <. Acesso em 09 mai. 2021.
BENTON, K. et al. Development and Evaluation of an Outpatient Palliative Care Clinic. Journal of hospice and palliative nursing: JHPN: the official journal of the Hospice and Palliative Nurses Association, v. 21, n. 2, p. 160–166, abr. 2019. Disponível em: <. Acesso em 09 mai. 2021.
BERNING, J. N. et al. A Novel Picture Guide to Improve Spiritual Care and Reduce Anxiety in Mechanically Ventilated Adults in the Intensive Care Unit. Annals of the American Thoracic Society, v. 13, n. 8, p. 1333–1342, 2016. Disponível em: <. Acesso em 09 mai. 2021.
BEST, M. et al. An EAPC white paper on multi-disciplinary education for spiritual care in palliative care. BMC Palliative Care, v. 19, n. 1, p. 9, 15 jan. 2020. Disponível em: <. Acesso em 09 mai. 2021.
BODEK, H. Facilitating the provision of quality spiritual care in palliative care. Omega, v. 67, n. 1–2, p. 37–41, 2013. Disponível em: <. Acesso em 09 mai. 2021.
BURBECK, R. et al. Volunteer activity in specialist paediatric palliative care: a national survey. BMJ supportive & palliative care, v. 5, n. 3, p. 287–293, set. 2015. Disponível em: <. Acesso em 09 mai. 2021.
BUSER, K.; AMELUNG, V. E.; SCHNEIDER, N. German community pastors’ contact with palliative care patients and collaboration with health care professionals. Journal of Social Work in End-of-Life & Palliative Care, v. 4, n. 2, p. 85–100, 2008. Disponível em: <. Acesso em 09 mai. 2021.
CAWLEY, N.; WEBBER, J. Research priorities in palliative care. International Journal of Palliative Nursing, v. 1, n. 2, p. 101–113, 2 abr. 1995. Disponível em: <. Acesso em 09 mai. 2021.
CHANG, B.-H. et al. Spiritual needs and spiritual care for veterans at end of life and their families. The American Journal of Hospice & Palliative Care, v. 29, n. 8, p. 610–617, dez. 2012a. Disponível em: <. Acesso em 09 mai. 2021.
CHANG, B.-H. et al. End-of-life spiritual care at a VA medical center: chaplains’ perspectives. Palliative & Supportive Care, v. 10, n. 4, p. 273–278, dez. 2012b. Disponível em: <. Acesso em 09 mai. 2021.
CONNOR. Stephen R.;BERMEDO, Maria Cecilia Sepulveda. Global Atlas of Palliative Care. Worldwide Palliative Care Alliance, World Health Organization. 2014. Disponível em: <. Acesso em 09 mai. 2021.
COOPER, D. et al. The competencies required by professional hospice palliative care spiritual care providers. Journal of Palliative Medicine, v. 13, n. 7, p. 869–875, jul. 2010b. Disponível em: <. Acesso em 09 mai. 2021.
DALY, D.; MATZEL, S. C. Building a transdisciplinary approach to palliative care in an acute care setting. Omega, v. 67, n. 1–2, p. 43–51, 2013. Disponível em: <. Acesso em 09 mai. 2021.
DAMEN, A. et al. What Do Chaplains Do: The Views of Palliative Care Physicians, Nurses, and Social Workers. The American Journal of Hospice & Palliative Care, v. 36, n. 5, p. 396–401, maio 2018. Disponível em: <. Acesso em 09 mai. 2021.
DAUDT, H.; D’ARCHANGELO, M.; DUQUETTE, D. Spiritual care training in healthcare: Does it really have an impact? Palliative & Supportive Care, p. 1–9, 23 jan. 2018. Disponível em: <. Acesso em 09 mai. 2021.
FITCHETT, G. et al. The role of professional chaplains on pediatric palliative care teams: perspectives from physicians and chaplains. Journal of Palliative Medicine, v. 14, n. 6, p. 704–707, jun. 2011. Disponível em: <. Acesso em 09 mai. 2021.
GEER, J. VAN DE et al. Training hospital staff on spiritual care in palliative care influences patient-reported outcomes: Results of a quasi-experimental study. Palliative Medicine, v. 31, n. 8, p. 743–753, set. 2017. Disponível em: <. Acesso em 09 mai. 2021.
GEER, J. VAN DE et al. Improving Spiritual Care in Hospitals in the Netherlands: What Do Health Care Chaplains Involved in an Action-Research Study Report? Journal of Health Care Chaplaincy, v. 24, n. 4, p. 151–173, dez. 2018. Disponível em: <. Acesso em 09 mai. 2021.
GOMEZ-CASTILLO, B. J. et al. Increasing the Number of Outpatients Receiving Spiritual Assessment: A Pain and Palliative Care Service Quality Improvement Project. Journal of Pain and Symptom Management, v. 50, n. 5, p. 724–729, nov. 2015. Disponível em: <. Acesso em 09 mai. 2021.
GOODHEAD, A.; SPECK, P.; SELMAN, L. “I think you just learnt as you went along” - community clergy’s experiences of and attitudes towards caring for dying people: A pilot study. Palliative Medicine, v. 30, n. 7, p. 674–683, 2016. Disponível em: <. Acesso em 09 mai. 2021.
GORDON, E. et al. The building bridges initiative: learning with, from and about to create an interprofessional end-of-life program. Dynamics (Pembroke, Ont.), v. 23, n. 4, p. 37–41, 2012. Disponível em: <. Acesso em 09 mai. 2021.
GRATZ, M. et al. Spiritual care in the training of hospice volunteers in Germany. Palliative & Supportive Care, v. 14, n. 5, p. 532–540, 2016. Disponível em: <. Acesso em 09 mai. 2021.
HALL, P. et al. Interprofessional education in palliative care: a pilot project using popular literature. Journal of Interprofessional Care, v. 20, n. 1, p. 51–59, jan. 2006. Disponível em: <. Acesso em 09 mai. 2021.
HANDZO, G.; FLANNELLY, K. J.; HUGHES, B. P. Hospital Characteristics Affecting HealthCare Chaplaincy and the Provision of Chaplaincy Care in the United States: 2004 vs. 2016. The journal of pastoral care & counseling: JPCC, v. 71, n. 3, p. 156–162, set. 2017. Disponível em: <. Acesso em 09 mai. 2021.
HANSON, L. C. et al. Providers and types of spiritual care during serious illness. Journal of Palliative Medicine, v. 11, n. 6, p. 907–914, jul. 2008. Disponível em: <. Acesso em 09 mai. 2021.
HEISER, D.; BRENNAN, M.; REDIC II, J. Spirituality and Palliative Care: The CARE Cabinet Intervention. Journal of Religion, Spirituality & Aging, v. 17, n. 1–2, p. 131–149, 24 maio 2004. Disponível em: <. Acesso em 09 mai. 2021.
HOLYOKE, P.; STEPHENSON, B. Organization-level principles and practices to support spiritual care at the end of life: a qualitative study. BMC palliative care, v. 16, n. 1, p. 24, 11 abr. 2017. Disponível em: <. Acesso em 09 mai. 2021.
IDLER, E. et al. Practical Matters and Ultimate Concerns, “Doing” and “Being”: A Diary Study of the Chaplain’s Role in the Care of the Seriously Ill in an Urban Acute Care Hospital (S710). Journal of Pain and Symptom Management, v. 49, n. 2, p. 412, 1 fev. 2015. Disponível em: <. Acesso em 09 mai. 2021.
JACKSON-JORDAN, E. et al. Evaluation of a Chaplain Residency Program and Its Partnership with an In-Patient Palliative Care Team. Journal of Health Care Chaplaincy, v. 24, n. 1, p. 20–29, mar. 2018. Disponível em: <. Acesso em 09 mai. 2021.
JEULAND, J. et al. Chaplains Working in Palliative Care: Who They Are and What They Do. Journal of Palliative Medicine, v. 20, n. 5, p. 502–508, 2017. Disponível em: <. Acesso em 09 mai. 2021.
KANG, J. et al. Developing competencies for multidisciplinary hospice and palliative care professionals in Korea. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, v. 21, n. 10, p. 2707–2717, out. 2013. Disponível em: <. Acesso em 09 mai. 2021.
KEARNEY, G.; FISCHER, L.; GRONINGER, H. Integrating Spiritual Care into Palliative Consultation: A Case Study in Expanded Practice. Journal of Religion and Health, v. 56, n. 6, p. 2308–2316, dez. 2017. Disponível em: <. Acesso em 09 mai. 2021.
KERNOHAN, W. G. et al. An evidence base for a palliative care chaplaincy service in Northern Ireland. Palliative Medicine, v. 21, n. 6, p. 519–525, set, 2007. Disponível em: <. Acesso em 09 mai. 2021.
KESTENBAUM, A. et al. “Taking your place at the table”: an autoethnographic study of chaplains’ participation on an interdisciplinary research team. BMC palliative care, v. 14, p. 20, 2 maio 2015. Disponível em: <. Acesso em 09 mai. 2021.
KESTENBAUM, A. et al. What Impact Do Chaplains Have? A Pilot Study of Spiritual AIM for Advanced Cancer Patients in Outpatient Palliative Care. Journal of Pain and Symptom Management, v. 54, n. 5, p. 707–714, 2017. Disponível em: << https://pubmed.ncbi.nlm.nih.gov/28736103/>. Acesso em 09 mai. 2021.
KOSS, S. E. et al. Training Community Clergy in Serious Illness: Balancing Faith and Medicine. Journal of Religion and Health, v. 57, n. 4, p. 1413–1427, ago. 2018. Disponível em: <. Acesso em 09 mai. 2021.
KRUIZINGA, R. et al. Professional identity at stake: a phenomenological analysis of spiritual counselors’ experiences working with a structured model to provide care to palliative cancer patients. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, v. 24, n. 7, p. 3111–3118, 2016. Disponível em: <. Acesso em 09 mai. 2021.
LEBARON, V. T. et al. How Community Clergy Provide Spiritual Care: Toward a Conceptual Framework for Clergy End-of-Life Education. Journal of Pain and Symptom Management, v. 51, n. 4, p. 673–681, abr. 2016. Disponível em: <. Acesso em 09 mai. 2021.
LEGET, C. Spirituality in Palliative Care. In: MACLEOD, R. D.; VAN DEN BLOCK, L. (Eds.). . Textbook of Palliative Care. Cham: Springer International Publishing, 2018a. p. 1–11. Disponível em: <. Acesso em 09 mai. 2021.
MASSEY, K. et al. What do I do? Developing a taxonomy of chaplaincy activities and interventions for spiritual care in intensive care unit palliative care. BMC palliative care, v. 14, p. 10, 2015. Disponível em: <. Acesso em 09 mai. 2021.
MENDES, K. D. S.; SILVEIRA, R. C. DE C. P.; GALVÃO, C. M. Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto & Contexto - Enfermagem, v. 17, n. 4, p. 758–764, dez. 2008. Disponível em: <. Acesso em 09 mai. 2021.
MOLLICA, M. A. et al. Perspectives on Palliative Care in Cancer Clinical Trials: Diverse Meanings from Multidisciplinary Cancer Care Providers. Journal of Palliative Medicine, v. 21, n. 5, p. 616–621, 2018. Disponível em: <. Acesso em 09 mai. 2021.
MONTAGNINI, M. et al. Self-Perceived End-of-Life Care Competencies of Health-Care Providers at a Large Academic Medical Center. The American Journal of Hospice & Palliative Care, v. 35, n. 11, p. 1409–1416, nov. 2018. Disponível em: <. Acesso em 09 mai. 2021.
NICHOLS, S. W. Examining the impact of spiritual care in long-term care. Omega, v. 67, n. 1–2, p. 175–184, 2013. Disponível em: <. Acesso em 09 mai. 2021.
O’CALLAGHAN, C. et al. “Life Within the Person Comes to The Fore”: Pastoral Workers’ Practice Wisdom on Using Arts in Palliative Care. The American Journal of Hospice & Palliative Care, v. 35, n. 7, p. 1000–1008, jul. 2018. Disponível em: <. Acesso em 09 mai. 2021.
OTIS-GREEN, S. et al. An overview of the ACE Project-advocating for clinical excellence: transdisciplinary palliative care education. Journal of Cancer Education: The Official Journal of the American Association for Cancer Education, v. 24, n. 2, p. 120–126, 2009. Disponível em: <. Acesso em 09 mai. 2021.
PAAL, P.; ROSER, T.; FRICK, E. Developments in spiritual care education in German--speaking countries. BMC medical education, v. 14, p. 112, 5 jun. 2014. Disponível em: <. Acesso em 09 mai. 2021.
PAGIS, M.; TAL, O.; CADGE, W. What do Non-clergy Spiritual Care Providers Contribute to End of Life Care in Israel? A Qualitative Study. Journal of Religion and Health, v. 56, n. 2, p. 614–622, abr. 2017. Disponível em: <. Acesso em 09 mai. 2021.
PANTILAT, S. Z. et al. Characteristics of palliative care consultation services in California hospitals. Journal of Palliative Medicine, v. 15, n. 5, p. 555–560, maio 2012. Disponível em: <. Acesso em 09 mai. 2021.
PESUT, B. Recovering Religious Voice and Imagination: A Response to Nolan’s Case Study “He Needs to Talk!” Journal of Health Care Chaplaincy, v. 22, n. 1, p. 28–39, 2016. Disponível em: <. Acesso em 09 mai. 2021.
PIOTROWSKI, L. F. Advocating and educating for spiritual screening assessment and referrals to chaplains. Omega, v. 67, n. 1–2, p. 185–192, 2013. Disponível em: <. Acesso em 09 mai. 2021.
POWELL, R. A. et al. Transcending differences to study the transcendent: an exploratory study of researchers’ and chaplains’ reflections on interdisciplinary spiritual care research collaboration. BMC palliative care, v. 14, p. 12, 18 abr. 2015. Disponível em: <. Acesso em 09 mai. 2021.
PUCHALSKI, C. M. et al. Improving the Spiritual Dimension of Whole Person Care: Reaching National and International Consensus. Journal of Palliative Medicine, v. 17, n. 6, p. 642–656, 19 maio 2014. Disponível em: <. Acesso em 09 mai. 2021.
RUDILLA, D. et al. Espiritualidad en atención paliativa: evidencias sobre la intervención con counselling. Psychosocial Intervention, v. 24, n. 2, p. 79–82, ago. 2015. Disponível em: <. Acesso em 09 mai. 2021.
SAUNDERS, C. Hospice and palliative care: an interdisciplinary approach. London: Edward Arnold, 1991.
SHIELDS, M.; KESTENBAUM, A.; DUNN, L. B. Spiritual AIM and the work of the chaplain: a model for assessing spiritual needs and outcomes in relationship. Palliative & Supportive Care, v. 13, n. 1, p. 75–89, fev. 2015. Disponível em: <. Acesso em 09 mai. 2021.
SINCLAIR, S.; MYSAK, M.; HAGEN, N. A. What are the core elements of oncology spiritual care programs? Palliative & Supportive Care, v. 7, n. 4, p. 415–422, dez. 2009. Disponível em: <. Acesso em 09 mai. 2021.
VERMANDERE, M. et al. Outcome measures of spiritual care in palliative home care: a qualitative study. The American Journal of Hospice & Palliative Care, v. 30, n. 5, p. 437–444, ago. 2013. Disponível em: <. Acesso em 09 mai. 2021.
WALKER, A.; BREITSAMETER, C. The Provision of Spiritual Care in Hospices: A Study in Four Hospices in North Rhine-Westphalia. Journal of Religion and Health, v. 56, n. 6, p. 2237–2250, dez. 2017. Disponível em: <. Acesso em 09 mai. 2021.
WILLIAMS, M. L. et al. A prospective study of the roles, responsibilities and stresses of chaplains working within a hospice. Palliative Medicine, v. 18, n. 7, p. 638–645, out. 2004. Disponível em: <. Acesso em 09 mai. 2021.
WORLD HEALTH ORGANIZATION – WHO. Definition of Palliative Care. Disponível em: <. Acesso em: 13 nov. 2019.